News

Marrow Failure & Myelodysplasia (MFM) Patient and Family Conference

SAVE THE DATE! Join Sick Kids for a virtual Marrow Failure & Myelodysplasia (MFM) Patient and Family Confer...

Paroxysmal nocturnal hemoglobinuria (PNH) Study

Sorry, this entry is only available in French.If you are interested in participating and sharing your experience...

Severe Aplastic Anemia (SAA) Survey – Eltrombopag

We are looking for individuals with severe aplastic anemia (SAA) and individuals who have been treated with eltr...

Addressing PNH unmet medical needs: a policy roadmap to aspire for change

Below is a  recording of a multi-stakeholder online conference held on December 7, 2022 and organised by Partner...

BOARD OF DIRECTOR’S POSITION

The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a federally incorporated and regis...

Marilynne Convey Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) Award 2022 Award ...

I was drawn to the nursing profession after watching many individuals in my family receive care for their cancer...

Partnering4PNH – MEP Kympouropoulos’s message

Global multistakeholder partnerships are essential to raise awareness of the unmet medical needs of people livin...

Promising Research in MDS

The Video Journal of Hematological Oncology (VJHemOnc) is a global, open-access video journal, dedicated to prov...

MDS Patient engagement collaboration opportunity

AAMAC has teamed up with Dr. Brett Houston and Nora Choi. They looking to organize a group of 5 MDS patients to ...

PNH Patient Recruiting Support

NFA Health, a Toronto-based creative agency, is looking for people diagnosed with PNH to participate in a resear...

Better Living with PNH, Day by Day!

Discover the comprehensive guide with a holistic approach to Better Living with PNH, day by day, from the Ca...

PNH Rare Disease Month Campaign launched

WHAT IS RARE DISEASE DAY? Rare Disease Day is the official international awareness-raising campaign for rare di...