News
Paroxysmal nocturnal hemoglobinuria (PNH) Study
Sorry, this entry is only available in French.If you are interested in participating and sharing your experience...
Marrow Failure & Myelodysplasia (MFM) Patient and Family Conference
SAVE THE DATE!
Join Sick Kids for a virtual Marrow Failure & Myelodysplasia (MFM) Patient and Family Confer...
Severe Aplastic Anemia (SAA) Survey – Eltrombopag
We are looking for individuals with severe aplastic anemia (SAA) and individuals who have been treated with eltr...
Addressing PNH unmet medical needs: a policy roadmap to aspire for change
Below is a recording of a multi-stakeholder online conference held on December 7, 2022 and organised by Partner...
BOARD OF DIRECTOR’S POSITION
The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a federally incorporated and regis...
Marilynne Convey Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) Award 2022 Award ...
I was drawn to the nursing profession after watching many individuals in my family receive care for their cancer...
Partnering4PNH – MEP Kympouropoulos’s message
Global multistakeholder partnerships are essential to raise awareness of the unmet medical needs of people livin...
Promising Research in MDS
The Video Journal of Hematological Oncology (VJHemOnc) is a global, open-access video journal, dedicated to prov...
MDS Patient engagement collaboration opportunity
AAMAC has teamed up with Dr. Brett Houston and Nora Choi. They looking to organize a group of 5 MDS patients to ...
PNH Patient Recruiting Support
NFA Health, a Toronto-based creative agency, is looking for people diagnosed with PNH to participate in a resear...
Better Living with PNH, Day by Day!
Discover the comprehensive guide with a holistic approach to Better Living with PNH, day by day, from the Ca...
PNH Rare Disease Month Campaign launched
WHAT IS RARE DISEASE DAY?
Rare Disease Day is the official international awareness-raising campaign for rare di...