About Us
About the Association
In 1987, the concerned parent of a child with aplastic anemia founded the Aplastic Anemia Family Association of Ontario. One of the very first goals of the Association was to advocate for the formation of a national bone marrow donor registry in Canada. Today, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a seamless support network for every Canadian patient, family member, friend and concerned healthcare provider dealing with aplastic anemia, myelodysplasia or PNH.
Led by a volunteer board of directors and a distinguished team of medical advisors from across Canada, the Association has a number of provincial chapters. The Association relies heavily on the generosity of individual donors and volunteers, including chapter coordinators, to provide an array of essential programs and services.
Programs & Services
- Telephone and e-mail peer-to-peer support
- Educational material
- Quarterly newsletter
- Local patient support group meetings
- Annual Patient Education Day
- Grants for medical research and education
- Promotion of Canadian Blood Services programs and the Unrelated Bone Marrow Registry