About the Association
In 1987, the concerned parent of a child with aplastic anemia founded the Aplastic Anemia Family Association of Ontario. One of the very first goals of the Association was to advocate for the formation of a national bone marrow donor registry in Canada. Today, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a seamless support network for every Canadian patient, family member, friend and concerned healthcare provider dealing with aplastic anemia, myelodysplasia or PNH.
Led by a volunteer board of directors and a distinguished team of medical advisors from across Canada, the Association has a number of provincial chapters. The Association relies heavily on the generosity of individual donors and volunteers, including chapter coordinators, to provide an array of essential programs and services.
Through the unfailing help of our donors, AAMAC continues to provide regular support to those touched by aplastic anemia, myelodysplasia or PNH, empowering the bone marrow failure community through education, support, advocacy and research.
We are pleased to attach our 2021-2022 Report, detailing our accomplishments over the past year.
We continue to work hard and look forward to next year. Thank you for your continued and unwavering support in helping AAMAC achieve its mission.
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Programs & Services
- Telephone and e-mail peer-to-peer support
- Educational material
- Quarterly newsletter
- Local patient support group meetings
- Annual Patient Education Day
- Grants for medical research and education
- Promotion of Canadian Blood Services programs and the Unrelated Bone Marrow Registry