About the Association
In 1987, the concerned parent of a child with aplastic anemia founded the Aplastic Anemia Family Association of Ontario. One of the very first goals of the Association was to advocate for the formation of a national bone marrow donor registry in Canada. Today, the Aplastic Anemia and Myelodysplasia Association of Canada is a federally incorporated and a registered national charity with the ambitious goal of providing a seamless support network for every Canadian patient, family member, friend and concerned healthcare provider dealing with aplastic anemia, myelodysplasia or PNH.
Led by a volunteer board of directors and a distinguished team of medical advisors from across Canada, the Association has a number of provincial chapters. The Association relies heavily on the generosity of individual donors and volunteers, including chapter coordinators, to provide an array of essential programs and services.
Programs & Services
- Telephone and e-mail peer-to-peer support
- Educational material
- Quarterly newsletter
- Local patient support group meetings
- Annual Patient Education Day
- Grants for medical research and education
- Promotion of Canadian Blood Services programs and the Unrelated Bone Marrow Registry
Board of Directors
Gwen BarrySecretary, Nova Scotia
Vivian DoTreasurer, Ontario
Jennifer GarveyNova Scotia
Ashley OakesPast Chair, British Columbia
Christine PappasVice-Chair, Ontario
Jesse PragerChair, Ontario
Pam WishartBritish Columbia
Dr. Y. DrorHospital for Sick Children, Toronto
Dr. Mary Margaret KeatingBethune Building @ the QEII Health Sciences Centre, Halifax
Dr. L. LarrattUniversity of Alberta Hospital, Edmonton
Dr. Heather LeitchSt. Paul's Hospital, Vancouver
Dr. K. SchultzBC Children's Hospital, Vancouver
Dr. John StorringMcGill University Health Centre, Montreal
Provincial Support Groups
British Columbia hosts regular support group meetings in Metro Vancouver and the Thompson-Okanagan for myelodysplasia, aplastic anemia, and PNH patients and their families. Please contact us for more information.
Alberta hosts regular support group meetings in Calgary and Edmonton for myelodysplasia, aplastic anemia, and PNH patients and their families. Please contact us for more information.
Ontario hosts regular support group meetings in Toronto, Hamilton, Waterloo, London, Oshawa and Ottawa for myelodysplasia, aplastic anemia, and PNH patients and their families. Please contact us for more information.
Meetings are held 2 -3 times per year in Quebec. These meetings are in French. Please contact us for more information.
The Atlantic support group normally meets on the last Wednesday of each month, except in July and August, from 3:00 to 5:00 pm. Our meetings are held at the Atlantica Hotel on Robie St. If you need more information or if a meeting in Halifax is too far out of the way for you, please contact us and we will attempt to find someone in your area with whom you can speak.