Partnering4PNH – MEP Kympouropoulos’s message
Global multistakeholder partnerships are essential to raise awareness of the unmet medical needs of people living with a rare disease across Europe and around the world.
Partnering4PNH brings various experts from Europe, Canada and Australia to propose policy recommendations that keep up with science.
Watch Member of European Parliament Stelios Kympouropoulos, the co-chair of Partnering4PNH talk about the importance of such partnerships to spark public debate and change the quality of life for people living with PNH. MEP Kympouropoulos’ support is highly appreciated and will be crucial to communicate Partnering4PNH’s policy recommendations.
Please check out our social media channels and share his message using the hashtags
#rarestrength #pnh #partnerships
Partnering4PNH is initiated and sponsored by Sobi.