{"id":4002,"date":"2023-01-03T15:29:47","date_gmt":"2023-01-03T20:29:47","guid":{"rendered":"https:\/\/aamac.ca\/?p=4002"},"modified":"2023-01-03T15:29:47","modified_gmt":"2023-01-03T20:29:47","slug":"addressing-pnh-unmet-medical-needs-a-policy-roadmap-to-aspire-for-change","status":"publish","type":"post","link":"https:\/\/aamac.ca\/fr\/addressing-pnh-unmet-medical-needs-a-policy-roadmap-to-aspire-for-change\/","title":{"rendered":"Addressing PNH unmet medical needs: a policy roadmap to aspire for change"},"content":{"rendered":"<p class=\"qtranxs-available-languages-message qtranxs-available-languages-message-fr\">D\u00e9sol\u00e9, cet article est seulement disponible en <a href=\"https:\/\/aamac.ca\/en\/wp-json\/wp\/v2\/posts\/4002\" class=\"qtranxs-available-language-link qtranxs-available-language-link-en\" title=\"English\">Anglais Am\u00e9ricain<\/a>.<\/p><p>Below is a\u00a0 recording of a multi-stakeholder online conference held on December 7, 2022 and organised by Partnering4PNH, a global multistakeholder policy initiative which brings together PNH specialised healthcare professionals, nurses, patients and patient organisations from Europe, Canada and Australia. Speakers included:<\/p>\n<ul>\n<li>MEP Istv\u00e1n Ujhelyi (S&amp;D, Hungary)<\/li>\n<li>MEP Stelios Kympouropoulos (EPP, Greece)<\/li>\n<li>Dr Morag Griffin (Haematologist PNH Specialist, Leeds Teaching Hospital, United Kingdom)<\/li>\n<li>Barry Katsof (President and Founder, Canadian Association of PNH Patients, Canada)<\/li>\n<li><strong>Cindy Anthony (Executive Director, Aplastic Anemia and Myelodysplasia Association of Canada, Canada)<\/strong><\/li>\n<li>Louise Arnold (PNH Specialist Nurse, Leeds Teaching Hospital, United Kingdom)<\/li>\n<li>Michael Brown (PNH Clinical Nurse Consultant, The Royal Melbourne Hospital, Australia)<\/li>\n<li>Emelie Persson (Head of Global Medical Affairs and Clinical Science Pegcetacoplan, Sobi, Sweden)<\/li>\n<\/ul>\n<p><iframe loading=\"lazy\" title=\"YouTube video player\" src=\"https:\/\/www.youtube.com\/embed\/AoBEr1ODi-E\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/p>\n<p>This will also be published in January on <a href=\"https:\/\/pnh.sobi.com\/\">Partnering4PNH | my-PNH (sobi.com)<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"<p>D\u00e9sol\u00e9, cet article est seulement disponible en Anglais Am\u00e9ricain.Below is a\u00a0 recording of a multi-stakeholder online conference held on December 7, 2022 and organised by Partnering4PNH, a global multistakeholder policy initiative which brings together PNH specialised healthcare professionals, nurses, patients and patient organisations from Europe, Canada and Australia. Speakers included: MEP Istv\u00e1n Ujhelyi (S&amp;D, Hungary) [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[7],"tags":[],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/posts\/4002"}],"collection":[{"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/comments?post=4002"}],"version-history":[{"count":0,"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/posts\/4002\/revisions"}],"wp:attachment":[{"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/media?parent=4002"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/categories?post=4002"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/aamac.ca\/fr\/wp-json\/wp\/v2\/tags?post=4002"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}