2021 Marrow Failure and Myelodysplasia Patient and Family Conference

Saturday April 17th, 2021 – 8:30 a.m. to 6:00 p.m.

SickKids Peter Gilgan Centre for Research and Learning
Salter Auditorium,
3rd Floor,
686 Bay Street,
Downtown Toronto

Please join us at this an interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.

This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Adult patients are also invited.

Conference agenda
Overview and new developments related to the conditions and their treatments; transition of paediatric patients to care in adult centres; information about Canadian treatment centres and support groups; raising awareness; new research to understand the diseases and develop new treatments in Canada and abroad.

Speaker list
Physicians, scientists, research students, nurses, social workers, genetic counsellor, patient and family representatives

Examples of bone marrow failure and myelodysplastic disorders relevant to the conference:

  • Aplastic anemia
  • Fanconi anemia
  • Shwachman-Diamond syndrome
  • Dyskeratosis congenita
  • Congenital amegakaryocytic thrombocytopenia
  • Familial thrombocytopenia with predisposition to leukemia
  • Pearson disease
  • Diamond Blackfan anemia
  • Sideroblastic anemia
  • Kostmann and severe congenital neutropenia
  • Cyclic neutropenia
  • Glycogen storage disease type Ib
  • Barth’s syndrome
  • Myelokathexis
  • Thrombocytopenia with absent radii
  • Familial or hereditary thrombocytopenias
  • Myelodysplastic syndromes (familial MDS/leukemia, de novo MDS, therapy-related MDS)
  • Multiple other bone marrow failure syndromes

Children are welcome!
Children’s activities and education sessions
hosted by Camp Quality volunteers.

The conference is free!
Lunch and refreshments included. Parking discounts available

For details and to register at no charge, please contact:
Michele Pickles, Marrow Failure and Myelodysplasia Program
416-813-7654 ext 298444 or michele.pickles@sickkids.ca

Options for in person attendance and virtual attendance through webcasting will be provided. Note that the number of in person participants is limited by the conference facilities. Early registration is recommended!

Register

Please fill out the form below to register for the meeting.

Information obtained on this form will be kept confidential and will not be shared with any other organization. Health information is used for statistical purposes and to assist AAMAC better serve the needs of patients.
Register