Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC)
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Supporting Canadians with bone marrow failure diseases

The Aplastic Anemia & Myelodysplasia Association of Canada (AAMAC) is a leading funder of research into bone marrow failure diseases in Canada. Our volunteer-run organization supports patients and caregivers across the country who are living with aplastic anemia, myelodysplastic syndrome (also called MDS or myelodysplasia) and paroxysmal nocturnal hemoglobinuria (PNH).

Giving Tuesday - November 29th 

How will you give back?



Ontario Patient Support Meetings

Click Here for details.



Tips for Your Caregiving Journey: Self Care for Caregivers

November 10, 2016
Thu 1:00 PM EST, DURATION 1H 30M

When a patient is diagnosed with a chronic disease, it not only affects the patient but also the caregiver. Caregivers can experience fatigue, or even burnout, brought on by the physical and emotional demands of caring for a loved one diagnosed with aplastic anemia, MDS or PNH. Therefore, as a caregiver it is important to maintain your health and well-being so that you can provide the best possible care to your loved one.

In this webinar Aimee Anderson, a licensed social worker from the Ottowa Hospital in Canada will explain how to take charge of your own care as a caregiver. She will begin by identifying the challenges and barriers that caregivers are commonly faced with, symptoms that indicate stress and tips on how to reduce stress, the importance of setting goals and how to improve your communication skills such as asking for and accepting help when most needed, along with other strategies that can help with your caregiving journey with you and your loved ones.

By the end of this webinar, you will understand:

  • How to manage caregiver burnout and stress
  • How to cope with ongoing daily life responsibilities and finding an equilibrium between work, finances, and home.
  • Practical advice and tips on how a caregiver can find time for themselves

Click here to register.


Clinical Trials

Do you have MDS and are interested in participating in a clinical trial?

Please click to see if you qualify. If you feel that you qualify, please print the clinical trial information and discuss with your oncologist/hematologist.

Presently the trial is being conducted at: Juravinski Cancer Centre at Hamilton Health Sciences Centre,  Princess Margaret Hospital and Odette Cancer Centre at Sunnybrook Hospital.

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What's New

Mixed Match Screening
Mixed Match will be screening at the Toronto Reel Asian Film Festival, Tuesday, Nov. 15th at 7pm at the Japanese Canadian Cultural Centre. There will also be a stem cell drive before and after the screening.  Doors at 6:30pm.  Tickets are available at bit.ly/mixedmatchra

November 10th Tips for Your Caregiving Journey: Self Care for Caregivers.  See "Upcoming Events" for details

MDS Awareness Day
October 25th

Donate now through CanadaHelps.org

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